SH1
24:58
NICU to Nonprofit: A CHD Parent's Journey
Advocacy & Nonprofits
Watch
Uncommon hearts. Unforgettable stories.
Get notified of new episodes
Featured
Ep 1
42:06
What Good vs Bad CHD Care Really Looks Like
Patient Stories
BC1
25:00
The 1952 Surgery That Changed Heart Care
Medical History
Latest
Ep 14
1:09:52
Mechanical Heart Valve vs. the Grand Canyon
Patient Stories
Ep 13
53:24
Patients in the Room
The System
Ep 12
44:38
More Than Survival: CHD Peer Mentors & Advocates
Support & Resources
All Episodes
Ep 1
42:06
What Good vs Bad CHD Care Really Looks Like
Patient Stories
Ep 2
33:53
Episode 2: Why Advocacy Matters
Advocacy & Nonprofits
Ep 3
23:35
Raw Advocacy & The Subtle Campaign That Saved Lives
Advocacy & Nonprofits
Ep 4
31:30
Episode 4: An International Comparison
Patient Stories
Ep 5
37:34
Episode 5: Our Shared Trauma
Patient Stories
Ep 6
49:17
Finding Someone Who Gets It: CHD Peer Mentors
Support & Resources
Ep 7
43:24
Climbing El Capitan with a Mechanical Heart Valve
Patient Stories
Ep 8
41:04
Episode 8: Waiting for a Heart
Patient Stories
Ep 9
47:26
Episode 9: Close to the Chest
Patient Stories
Ep 10
50:15
The App That Puts CHD Patients in Control
Support & Resources
Ep 11
58:00
Informed Consent vs. Medical Paternalism: A CHD Reproductive Rights Story
Patient Stories
Ep 12
44:38
More Than Survival: CHD Peer Mentors & Advocates
Support & Resources
Ep 13
53:24
Patients in the Room
The System
Ep 14
1:09:52
Mechanical Heart Valve vs. the Grand Canyon
Patient Stories
Bonus
44:20
Bonus: Peer Support Program
Support & Resources
SH1
24:58
NICU to Nonprofit: A CHD Parent's Journey
Advocacy & Nonprofits
SH2
36:01
"We're a Nonprofit Now. What Do We Do?"
Advocacy & Nonprofits
BC1
25:00
The 1952 Surgery That Changed Heart Care
Medical History
BC2
21:12
Longest Lived Open Heart Patient: Part 2 - What Came Next
Medical History
BC3
35:05
Longest Lived Open Heart Patient: Part 3 - Why It Matters
Medical History
DI1
The Heart-Mind Connection
The System
DI2
Why Research Never Reaches Families
The System